WORKING TO PREVENT WANDERING INCIDENTS AND DEATHS WITHIN THE AUTISM COMMUNITY

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FOR PHYSICIANS AND THERAPISTS

Autism, now affecting an estimated 1 in 110 children, is a diagnosis that represents many symptoms, some of which can lead to serious health and safety risks, even death.

In 2008, Danish researchers found that the mortality rate among the autism population is twice as high as the general population. In 2001, a California research team attributed elevated death rates in large part to drowning. Drowning, prolonged exposure, and other wandering-related factors remain among the top causes of death within the autism population.

Currently, no estimates exist and no formal methods are in place to track how many children and adults wander per year, but in a 2007 online poll through the National Autism Association, 92% of parents reported that their child/ren with autism have a tendency to wander.

As a medical professional, it’s important to familiarize yourself with the dangers of autism-related wandering, as well as share prevention and safety information with caregivers. Prevention materials, including this general brochure, can be printed and sent electronically to caregivers. Other sections of this site, such as FAQ’s, cover many aspects of prevention, response and resources. Anyone with a child or adult with autism should be given the option to fill out a first-responder alert form and a Family Wandering Emergency Plan (FWEP).

An ICD-9 diagnosis code is now available for wandering. Please assign code V40.31 – Wandering in diseases classified elsewhere to your patients who qualify. For more information, visit http://www.cdc.gov/ncbddd/autism/code.html

Because many caregivers remain unaware of risk factors, spreading the word about autism-related wandering and providing resources to patients their families could prevent incidents.

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