WORKING TO PREVENT WANDERING INCIDENTS AND DEATHS WITHIN THE AUTISM COMMUNITY

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AUTISM & WANDERING

In 2008, Danish researchers found that the mortality rate among the autism spectrum disorder (ASD) population is twice as high as the general population. In 2001, a California research team found that elevated death rates among those with ASD were in large part attributed to drowning. Drowning often occurs as a result of wandering off. Drowning, along with prolonged exposure and other factors, remain among the top causes of death within the autism population. Although there is no known data that recognizes whether deaths associated with wandering are on the rise within the autism population, anecdotal reports suggest an increase.

There are various reasons someone with ASD may wander, but mainly they are looking to either get to something or away from something. Like dementia, persons with autism gravitate towards items of interest. This could be anything from a road sign they once saw to a neighbor’s pool to a merry-go-round in the park. Other times, they may want to escape an environment if certain sounds or other sensory input becomes bothersome. Outdoor gatherings present an especially large problem because it is assumed that there are more eyes on the child or adult with autism. However, heavy distractions coupled with an over-stimulating setting can lead to a child or adult wandering off without notice. School settings are also an issue, especially those that have un-fenced or un-gated playgrounds.

A new, unfamiliar, or unsecured environment, such as a relative’s home, may also trigger wandering, as well as episodes of distress, meltdowns, or times when a child or adult with autism has certain fears or anxiety.

Wandering occurrences tend to increase in warmer months when persons with ASD are more likely to play outside or attend summer or day camps.

NAA President, Wendy Fournier discusses Autism-Related Wandering
with Erik Nanstiel of FAIR Autism Media.